Outpatient Experience Group
OEG is always looking for new members to help improve outpatient services. Members can be involved at a level of activity that suits them and can give their input via email, telephone or in person at monthly meetings.
We are keen to welcome representatives from LGBT+, BAME and Armed Forces communities to ensure we have a diverse group of voices.
We welcome patient feedback and also enquiries to join the group. If you would like to join the group, or have something you feel they should discuss, please contact: cuh.ppi@nhs.net
Addenbrooke’s Cancer Patient Partnership Group (CPPG)
The Addenbrooke’s CPPG is a group of patients and carers (past or current) who work with hospital staff to design and improve cancer services. The group has 50+ members and is led by a Committee of up to 20 members. They have co-produced this video which emphasises the importance of the patient voice and co-production within Addenbrooke’s Cancer Services.
The CPPG is always looking for new members. They can be involved at a level of activity that suits them and can give their input via email, telephone or in person at meetings and workshops. There’s no regular commitment or requirement to come to meetings. We are keen to welcome representatives from LGBT+, BAME and Armed Forces communities to ensure we have a diverse group of voices.
For more information, contact:
Lenja Bell, Macmillan Co-Production Lead, 07729 105550
Email: cppg@addenbrookes.nhs.uk
Age UK
We provide a wide range of vital services and support to older people across the county. Our mission is to promote the well-being of all older people and to help make later life a fulfilling and enjoyable experience. Much of our work would not be possible without the incredible support we are given by our volunteers. Volunteers help us in a variety of roles and particularly in relation to volunteer visiting/befriending, helping to reduce loneliness and social isolation.
Age UK Cambridgeshire and Peterborough
Helpline for all enquiries Tel: 0300 666 9860
Email: informationservices@ageukcap.org.uk
Contact address: 2 Victoria Street, Chatteris, Cambs. PE16 6AP
Website: www.ageukcap.org.uk
Facebook: Click here
Twitter: Click here
Patient and Public Involvement in Research (PPI)
If a clinical trial isn’t for you, you can still get involved in research by becoming a member of the Cambridge University Hospitals (CUH) Patient and Public Involvement (PPI) panel
Patients and the public play a vital role in improving our research by sharing their experiences. Hearing their views can shape new research proposals and ensure that our research meets patient’s needs.
There are over 60 members from the East of England of all different ages and backgrounds on the panel. They review research proposals and patient materials, and meet with researchers to ask questions and provide feedback.
No health experience is needed and panel members choose which projects interest them. All you need is an interest in sharing your views and experiences to help researchers carry out the best research they can. Panel members are also invited to research talks and training opportunities. This is a great way to be involved in research, make a difference and meet new people.
Further information can be found at: https://cambridgebrc.nihr.ac.uk/public/
Or contact the PPI team: ppird@addenbrookes.nhs.uk
Addenbrooke’s Charitable Trust (ACT)
With the help of many generous supporters, we provide additional funds so that your local hospitals can offer the very best care day after day, year after year. Volunteers make a huge contribution to ACT by giving their valuable time to help inspire and enthuse the community to fundraise for the hospitals.
Contact details:
ACT, Box 126, Addenbrooke’s Hospital,
Hills Road, Cambridge
CB2 0QQ
Tel: 01223 217757
Email: hello@act4addenbrookes.org.uk
Website: www.act4addenbrookes.org.uk
Macmillan Cancer Services
More specifically, volunteers are fundamental to improving the patient experience in the Cancer Directorate at Addenbrooke’s. Our vision for volunteering is:
• To improve the overall patient experience and outcomes
• To provide volunteers with a positive volunteering experience through role development, appropriate training, support and supervision
• To provide more effective support to the clinical team, working together to improve the quality of care
For further information:
MCISS Tel: 01223 274801
Office Tel: 01223 274421
Website: www.macmillan.org.uk
Carers Trust Cambridgeshire
Tel: 01223 596463 or 0345 241 0954
Website: www.carers.org
The Theodora Children’s Charity
A stay in hospital can be frightening for a child but the Giggle Doctor visits help to improve the well-being of these young patients, reducing distress and anxiety, increasing opportunities for play and generally improving their experience of hospital. Two Giggle Doctors visit Addenbrookes each week and during each four hour visit, Dr Fab, Dr Pop-a-long and the other Giggle Doctors will tailor each interaction to the child, whether it’s a joke, a song or simply companionship. It is not always about laughter, sometimes the focus of the visit might be on music, magic or storytelling. The children are not just spectators but participants in the experience.
Our Giggle Doctor have all completed our extensive training programme including modules on child development, infection control, the impact of illness on families, and how to adapt artistic skills to the hospital environment. The Giggle Doctors are also trained in ‘intensive interaction’, a technique which has been shown to improve communication skills of disabled children who have severe communication difficulties. Giggle Doctors always get permission from the child before approaching them. At present the Giggle Doctors bring magical moments to 30,000 children each year at 20 hospitals, 3 hospices and 2 specialist care centres across England.
Theodora Children’s Charity
40 Pentonville Road
London
N1 9HF
020 7713 0044
Email: theodora.uk@theodora.org
Web: http://uk.theodora.org/en-gb
Maggie’s
Located in the grounds of Addenbrooke’s hospital our centre is a warm and welcoming place with professional staff on hand to offer the support people need to find their way through cancer. Maggie’s is place to find practical advice about benefits and eating well; a place where qualified experts provide emotional and psychological support; a place to meet other people or simply to sit quietly with a cup of tea. More details of our programme and activities can be found on our website, or telephone the centre if you would like to speak to one of our cancer support specialists.
Tel: 01223 249220
Email: cambridge@maggies.org
Web: www.maggiescentres.org/centres/maggies-cambridge
Headway Cambridgeshire
We work across Cambridgeshire, including Peterborough, providing a wide range of services including information and advice, training, therapies, gym sessions, social opportunities, and volunteering. We deliver these services through countywide outreach support mainly in people’s homes, our Hospital Brain Injury Co-ordination service at Addenbrooke’s Hospital, and via specialist slow-stream rehabilitation at our hubs in Cambridge and Peterborough, offering various workshops in lifeskills and activities. Headway Cambridgeshire. For more information, please contact:
Address:
Block 10, Ida Darwin,
Fulbourn,
Cambridgeshire CB21 5EE
Tel: 01223 576550
Email: info@headway-cambs.org.uk
Web: www.headway-cambs.org.uk
